PATCHES HEART GROUP
Run by heart families - for heart families
We are a support group for families who have children with congenital heart defects or acquired heart conditions.
We support from prenatal diagnosis throughout with no upper age limit .
We have been supporting families since 2011 alongside many of the larger well known Chd charities .
We aim to support all families including those whose children have complex needs due to genetic conditions / syndromes which mean a vast array of other health, physical, speech, feeding and developmental problems
We offer friendly parent to parent support, information & signposting
We offer 24/7 support in our online family support group on facebook.
Our online admin are all parents with very different experiences of being heart parents and are happy to help families on our closed member group on Facebook .
please click on the link below to request to join or you can email us at patchesgroup@ymail.com
Social Media Links
Join our facebook family support group
https://www.facebook.com/groups/108795909224199/
Follow our Public Facebook Page
https://www.facebook.com/patchesheartgroup/
Follow our Insta page
https://www.instagram.com/patchesheartgroup/
THINK HEART
- Heart rate - too fast or slow? (normally 100 to 160 beats per minute)
- Energy & Eating - sleepy, quiet, too tired to eat, falling asleep during feeds?
- Arterial Saturation - a blue, dusky or grey colour (normal oxygen saturations 95-100%)?
- Respiration - breathing too fast or slow? (normally 40-60 breaths per minute)
- Temperature - cold to touch - particularly hands and feet? ©
The Think HEART initiative was Pioneered by Dr. Joan LaRovere, Director of Royal Brompton Hospital's (RBH) Paediatric Intensive Care Unit.
"Think HEART gives health professionals not specifically trained in cardiology the skills, knowledge and confidence to spot potential heart problems in new born babies. It will also empower PARENTS to spot any potential health problems at home and will hopefully give them the confidence to take action."
If you think your baby or child might be demonstrating any of the above please talk to your GP immediately and ask to be referred to a paediatric doctor to investigate the symptoms further. many babies with CHD go undiagnosed until they go home and parents begin to struggle. With this simple initiative we may be able to bring CHD to the attention of doctors faster and help more babies to survive.
IF YOUR BABY IS REALLY STRUGGLING DO NOT HESITATE TO CALL 999
Babies and children deteriorate FAST.
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